Benign Growths and Lesions

Dr Eng mentioned that in general certain benign growths and lesions should not be removed in patients with a PTEN mutation as they tend to regrow even larger (examples were lesions of the mouth, face and hands that have not been seen to become malignant).  Of course, these should be checked and followed by a doctor.  She was pleased that Tommy had a full tonsillectomy because if any tonsil tissue had been left behind (as would be the case with a partial tonsillectomy), the chances of regrowth were far greater.  She also mentioned that if Tommy’s thyroid ever needs to be removed for a malignancy, it should be removed in full as they have not had much success with partial removals (the thyroid regrows with the malignancy).  Because thyroid problems are so common in patients with a PTEN mutation, we had a baseline sonogram done of Tommy’s thyroid.  Regular thyroid sonograms are recommended beginning at age 18 for patients with a PTEN mutation (there are other additional screening guidelines for patients with a PTEN mutation).  Finally, she explained to us that she has a theory that patients with a PTEN mutation metabolize medicine faster than the average population.  Tommy is participating in two studies being conducted by Dr Eng.

May 1, 2011 · PTENLife · No Comments
Tags: , ,  · Posted in: Growths and Lesions, Medical, PTEN Life, PTEN Mutation

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