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  1. Samia Sibley - January 12, 2017

    I am a mother of two children with autism and now diagnosed with Pten Syndrome. We recently moved to the Salt Lake City area and would LOVE to find a support group if possible. We are in the process of getting our kids set up with specialists through Primary Children’s Hospital. Do you know of any conventions held for PTen families? I am hoping to learn from parents who have traveled this road before me. I’m ready and willing to participate in fundraisers for research as well. I am reading your site and just keep thinking that this is exactly what we are experiencing! Thank you for all the work you have put into this place. It is supremely helpful. Thanks in advance for any pointers you may have for me.

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