Troy’s Story
In the words of his mother, Erica: So it’s a long story but it’s ours. Thanks for reading and providing an outlet for other parents like us to post our struggle and ultimately our happy ending. At my 20 week ultrasound appointment the nurse was measuring my baby and asked me if I was sure […]
December 1, 2012
·
PTENLife ·
2 Comments
Tags: Adenoidectomy, BRRS, Cowdens Syndrome, Intussusception, Macrocephaly, polyps, PTEN Mutation, Respiratory Issues, Sleep Apnea, Sleep Issues, Tonsillectomy, Vein of Galen Aneurysm · Posted in:
Developmental Story
Like the medical issues, we did not appreciate the full extent of Tommy’s developmental issues right away. They started slowly and subtly, and revealed themselves progressively. He took much longer than we remembered with our other children to hold his head up by himself, but it was big. He was late in all his milestones […]
April 30, 2011
·
PTENLife ·
4 Comments
Tags: Autism, Developmental Issues, Developmental Story, Early Intervention, Mental Retardation, Occupational Therapy, Pervasive Developmental Delays, Physical Therapy, Potty Training, Sleep Issues, Speech Therapy, Stimming · Posted in: